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Lumbopelvic difficulties

by Karen
(Llanelli, Wales, UK)

After many searches I came across your site, I have been suffering for 5 years now and have yet to find any help or even had a Dr give me any information or advice on how to manage my problems, it started 5 years ago, though I suspect the problem stems from many years previously at the age of 12 I fell from a height onto my lower spine, my mother was told that I should have total bedrest for a couple of weeks for a dislocated coccyx. I had lots of health problems after this, including upper respiratory problems, which have never been resolved. Then 5 years ago in a fall from a window, I fractured my T12 vertebrae, it was an unstable fracture, and I was told that I had a congenital failure of segmentation of the lumbosacral junction, which the T12 L1 junction had been compensating for, which is why the T12 fractured in the fall. After fusion reduction for the T12 fracture, I have since been left struggling with many problems, pain in the upper back and lower joints, unable to move more than a few steps in the house and even then just shuffling along as best I can, with extreme pain that seems to radiate from the centre of my body, both up my spine to the upper back and shoulders, and down into my legs, knees and ankles. My ankles and feet swell up on a daily basis from just trying to move about the house, with severe swelling and pain that resembles a sprained ankle but in both feet at the same time (see attached Pics). Any information or advice you can offer would be greatly appreciated, even if it were to just better enable me to describe the problems to my own Dr, who when he asks where the pain is, and I try to say it seems to be all over and moves depending on what I'm doing, describing what I have above, he just prescribes anti inflammatories without even examining me to assess the problem. Any help would be greatly appreciated.

Thanks

Karen

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Lumbopelvic difficulties

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Jul 11, 2011
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FEET SWELL
by: ALICE (INDIANA)

omg i thought i was the only person like that i would also love to know whats gone on i do the samething my feet look just like that i also was in a car accident being rear ended i had to get surgery cervical fusion on c4 c5 and i came out of surgery in more pain than what i had berfore pt can not do its puts me in more pain its not gettting better if not worse and my doctor like yours doesnt know crap the same day i came out of surgery my 2nd toe on my right foot stays numb i told my doctor this and he said that i would feel this because my nerve was healing sorry to mention i also had a pinch nerve in my neck the doctor had to fix but apart from the pain my feet look just like that and its a everyday thing

Dec 29, 2010
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You are your own advocate
by: Mitch - MTS

Karen-

I'm sorry to hear of your years of difficulties. Your problems appear to be very extensive and beyond what I can really help you with over the internet. With that in mind, my recommendations to you are to keep fighting and be your own advocate.

What I mean by this is that if you don't fight for yourself, no one else will. So, you have to keep fighting and searching for the best care possible for yourself. If you were here in the states, I would be able to recommend several major medical centers that you could contact to have your charts reviewed. I know that it isn't quite that easy in the UK, because of your medical system. But, you will have to do everything that you can to recommend answers. And, if your physician isn't able to give you answers, have them send you to someone who can. I never have a problem with someone who doesn't know how to fix you, as long as they keep searching for someone who does know how to fix you. Things like anti-iinflammatories help with pain and symptoms, but they don't fix the problem that is causing the pain.

Because of the extent of your issues, you need to get a team of physicians assembled to give you a more global approach. This would include orthopedists for the bone and joints, a physio to help restore function, a psychiatrist/psychologist to help with the mental approach to your injuries, and possibly a cardiologist to help with the blood flow issues that contribute to your swelling, and anyone else who may be able to contribute to helping your issues. You may want to consider some alternative methods as well. Your regular physician needs to be the coordinator of all of this, but needs to help them all work together to find you answers.

Good Luck!

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